2017 Australasian CF Conference – reports

CF Auckland had a number of our community attend the recent Australasian CF Conference in Melbourne. See below reports from Sally Sprosen, Amanda Blakey and Jane Drumm Report by Sally Sprosen 2017 Australasian CF Conference Report by Amanda Blakey 2017 Australasian CF Conference Report by Jane Drumm post Australasian Conference 2017      
More

Updated clinical guidelines

Starship Children's Hospital has updated many of their cystic fibrosis clinical guidelines. There are guidelines around infection control, non-infective respiratory complications of CF and sleep and sleep disorders. Although aimed at health professionals, many parents of children with CF may find them helpful. Check them out here.
More

CFNZ recent position statements

CFNZ have recently released two new positions statements on: Population-based CF carrier screening Innovative medicines These statements aim to keep our CF community up to date with current issues affecting people with CF, including PHARMAC funding of Kalydeco.  They also include suggestions about how you can help.  
More